Navigating the Event Horizon

Our lives are full of cycles:   We learn, we teach, we become wiser.  We gain confidence, we take risks, we learn moderation. Some cycles are repeated again and again as we age. We trust, we are disappointed or betrayed, we make better choices about who we confide in, or we don't.  These cycles of trial and error are the mechanism by which we learn to navigate our world, but when you remove the 'why' from these experiences, our ability to learn from them is compromised. If you don't recognise that your trust has been abused, rejected or betrayed, or do not understand the reason why, how do you make a better decision next time?  How do you protect yourself?

One particular cycle (trying and failing to get the outcome I desired, and blundering into exactly the same issue next time I tried) was interrupted when I got my diagnosis 7 years ago:  I learned about Asperger's and that lent me the understanding I needed to begin to extricate myself from the cycle.  I nearly fell back in when, after copious research, I realised that there were no apparent solutions to how Asperger's affected my life.  I had simply added one more step in my cycle:  Try and fail, but fully appreciate the impact on myself, and others before blundering into it once again.  I still didn't know why, and even if I did, I did not have the language, skills or support to try to improve things.

But I wasn't ready to admit defeat.  I decided to embrace the positives.  I decided to use my experiences to illuminate the little-understood world of Asperger's. - to provoke discussion and highlight issues.  I had some success, which allowed me to take the next step...  And when the invitation came, I accepted and I learned about a possible solution - a way to claim back a portion of my life that I had never realised was lost.  I began to co-present The Different Engine's Aspie TA workshops. I made new friends and eventually, the illumination spread to those around me, letting everyone see me more clearly, and I, them. I am no expert in Transactional Analysis - I have a basic vocabulary, but is is enough to enable dialogue, and consequently, understanding.

But life with Asperger's is rarely so straightforward....

One of the most painful aspects of living with Asperger's, is the way that huge, hulking misunderstandings can still come barreling out of left-field to knock you senseless and make you question your entire world view from the tiniest details to the broadest foundation.

Everyone suffers unexpected setbacks at sometime in their lives, no matter how they try to insulate themselves from disaster.  I myself have spent a lifetime, unsuccessfully trying to find ways to avoid getting hurt.  Enhanced understanding cannot cover every eventuality, and certainly cannot stop the dreadful emotional impact of misunderstandings when they happen.  So you explain yourself, people understand, you feel more relaxed and accepted, you take a chance and trust more.  In neurotypical people, there are numerous buffers (tests, if you like) that ensure that the risk is manageable; trust growing incrementally, allowing only the most worthy and compatible into the inner circle of genuine and mutual intimacy, where lasting harm could be done. This is not the case with Asperger's.

Asperger's not only means you are without the vast majority of these 'buffers', (meaning you are likely to risk far too much in one go), but also that you are likely to be unaware that this is happening until it is too late (leaving you totally unprepared for the disaster when it descends and utterly defenceless in its wake).

When I have encountered such disasters in the past, I have always responded to the appalling emotional and psychological pain they inflict by removing myself from everything and everyone involved immediately and permanently.  An over-reaction?  It may seem that way to a neurotypical, but I have a pitifully limited defense.  It is rare for me to trust, and rarer still that I relax in another's company.  So when it turns out that, in my enthusiasm to celebrate some of those rare relationships, I have unwittingly caused harm to them, my world falls apart.

 I suppose it is a nod to progress that I have not acted immediately on this occasion, despite the impact of this particular disaster being as painful as any I have encountered.  I need to know if this can be resolved, if my world view can survive, and whether I can live with that resolution, should it materialise. Running away and hiding from the pain is as attractive as it's ever been, but I will see this through. I need to know if it is possible to build mend bridges instead of burning them.  Sometimes, it seems, the only thing you can do when trust has let you down, is to trust that things will get better, and I'll emerge from this black hole.

If Hawking radiation can do it... maybe I can too.

The Trust Relationship Between this Workstation and the Primary Domain has failed...

I can only apologise for the delay in posting my blog…  I wrote one for February and also for March.  I will post neither as, looking back, they were not my thoughts.  Suffice it to say that, (due to my condition (chronic migraine and allodyna) and the medication I have to take in order to function) my personality, and consequently, my outlook were altered both pharmacologically and by sleep deprivation.  I have no wish to share these experiences, and I don’t think hearing my woeful rants written during that time will be of any benefit to anyone, least of all, me. 

Despite the weather and disruption of March, things have recently become much more settled for me.  The situation at work (which was responsible for many of the difficulties of previous months) has been satisfactorily resolved.  When things looked bad, I applied for another job and was invited for interview, which I attended.  Before they finished their deliberations, the problems at work had evaporated, and I withdrew my application - this time for the right reasons. (The hours didn’t suit; the commute was a problem…  It simply wasn’t worth the move, despite my delight at the possibility of working in graphics once more.)  There were emergent opportunities in my job for including some graphics and marketing work… things were looking up.

It got me thinking about ageing.  I will be 50 later this year, and I think I am finally starting to feel comfortable in my own skin.  I still have no well-formed sense of self, but I am much more likely to consider my own needs when making decisions.  I am happy with my current work situation.  So, is this really just a plateau in the profile of peaks and troughs?  I think not. 

A little while ago, I was introduced to Erikson's theory of the Psychosocial Stages of Development.  I suppose I approached in much the same way as someone would an astrological forecast – fitting my experience to the categories and feelings, but I was quite sure, that I had not come out of this process unscathed…

There is nothing like the first flickering shadow of one’s own mortality to make you reassess your priorities.  Life, it seems, is too short.  I have had an interesting and varied work life.  I don’t need a highly paid, high pressure job.  I don’t want a long working day and short holidays so I hardly see my son.  I have other things queuing up to fill my time:  I have a book to finish with my son;  I am a director of The Different Engine; I have historical events to attend; I have paintings to paint, music to listen to, et cetera and so on…

Perhaps it is this age-earned ‘wisdom’ that was responsible for my decision not to post my previous two blog entries… The confidence to wait is something I have always felt I lacked in the past – my need for additional time to process probably played into my anxiety for not responding quickly enough, and fear; my tendency to make panicked decisions.  With hindsight, the waters were always calmer than they seemed at the time; the tempest exaggerated or wholly imagined.  

Perhaps this is the wisdom of age, or maybe a by-product of deepening trust. Trust is a fragile thing, but I have followed some excellent advice a friend gave to me several years ago: Surround yourself with kind people.   Trust is fragile, but I now realise that it gets stronger when maintained.  I have acquired a very select but extremely high quality group of friends over the last few years, and I trust them as much and more, than I have trusted anyone.  But I nearly walked away from my job when I perceived that my trust had been betrayed...  But trust must be maintained in the face of apparent betrayal, to be sure there is no solution to be achieved, no corner to be turned... Because I waited, a solution was found, an apology and a commitment made and trust was renewed.  It made me realise  just how many times I may have turned away too soon....

There is a central principle in TA. Eric Berne initiated the principle within Transactional Analysis that we are all born 'OK' — in other words, good and worthy. Frank Ernst developed these into the OK matrix, (also known as the 'OK Corral' after the famous 1881 Tombstone shootout between the Earps and the Clantons).

I realised some time ago that, for the most part, I have spent my life in the two left hand boxes, and this position is indicative of a complete lack of trust (in myself and others).  The title of my blog is "The trust relationship between this workstation and the primary domain has failed" and is the only surviving element of my discarded rants of last month.  You can imagine my metaphorical interpretation of this innocent computer error message - it was very much in line with the bottom left hand square of the matrix:  “Everything is broken and it won’t get better.”

Now that things have settled somewhat and my trust is restored, I can put my title where it belongs which is in the top right hand square of the matrix:  “Ha! That error message is a T-shirt, right there!  I’ll call IT and they’ll come and fix it”. 

Pardon my English

I marvel at the English language. I am struck by the bizarre spelling and the grammatical and usage rules that are routinely broken.  I admire the exclusivity of 'good grammar', and I especially appreciate the rich variety of  descriptive vocabulary and multiple meanings of many of them; often at complete odds with one another...  I acknowledge that there are often ten different ways to say everything, and don't get me started on pronunciation...

In short, the English language is analogous of the complexity of the NT world which I navigate and the difficulties experienced by those of us who do not possess it as innate language.  There is no substitute for plain speaking, but I have learned to use this complicated tool to articulate my world in ways most likely to reach those unfamiliar with it.  But there is a danger here:

The tool with which I try to express the realities of my world, can be held against me in the most oppressive of ways.  It would appear that my joyful use of the English language can, to some, appear superior - as though I were trying to highlight the difference in our ability/knowledge/class... take your pick.  My choice of subject matter can highlight the same inequality, I am told.  Should I adhere to the apparent norm, where only the most intelligent or privileged use correct grammar and the full range of their vocabulary? The idea that only superior, privileged people speak correct English with a large vocabulary, or that only Physicists are interested in physics is untrue and an NT social construct.
It is natural to me to use the full extent of the tools at my disposal, regardless of who I am talking to. Should I 'dumb down' to 'fit in'?  'Now hang on!' you may say... 'Just a few alterations to take into account peoples' feelings will make all the difference...'  That sounds reasonable, doesn't it?  But how does an Aspie anticipate what feelings might be hurt?  (I will have made no prior judgments about a person's intelligence or vocabulary before I speak to them.  I will not notice their discomfort with the language unless they tell me explicitly.)  I do not 'talk down' to anyone... not even children, although I will offer simpler synonyms and definitions to them, along with my normal speech - they are much better than adults at telling me what they need.

The social world is a riot of complex, misleading and hidden cues that NTs tap into easily, often without conscious thought, so should expect an Aspie be expected to alter their speech to accommodate the 'hidden' feelings of the NT majority?  I wonder if this isn't just as problematic as expecting an Aspie to know when someone is being sarcastic because we rely on the NT person letting us know what they really meant... surely it would be easier if everyone was more clear?

I daydream sometimes about what it would be like in a world where everyone only said what they meant, in simple terms, without subtext or contradictory expressions and body language...  Where everyone would have an opinion that was fluid - based only on the available evidence at the time, without reliance on ingrained memory and social influences...  Would this world be dull? Unemotional? Soulless? I think not.  It would be honest, lively and liberating.  The old adage of Equity over Equality would have no meaning:  The barriers would not exist.  No-one would feel alienated, or need to be lifted, propped up or rescued.

Friendly fire

I am often told that I am talented.  I am aware that this is meant as a compliment, but I struggle with the concept of compliments.  I am aware that the 'normal' response to a compliment (apart from acknowledgement and reciprocation) is to 'feel good about oneself, and thankful to the compliment-giver.'  It is almost entirely an intuitive interaction. With my logical, cognitive mind, I understand this to be the main purpose of a compliment.

In people such as myself, compliments are not given or responded to intuitively.  I have been known to wax lyrical about how uneasy compliments, in fact, make me feel... I know I have described them as being almost like physical blows, when I am feeling particularly vulnerable.  It is when you experience this without intuiting the good feeling, that a compliment can appear as an unsolicited demand for acknowledgement and reciprocation.

"What?  How cynical!" I hear you cry.  But I assure you, it is not cynicism that negates the positive effect of compliments.  It is merely an effect of applying logic ahead of emotion.  Let me explain:  To say I am talented, is no different (in my world) to telling me that I am above average in some way, at painting, singing, writing.  I know I can paint - I have spent more time than is usual in practicing painting techniques and have become quite proficient in certain aspects.  My immediate response to what is clearly a compliment, is one of confusion.  And herein lies the difficulty.  I will try to break down my thought process to make the outcome clearer: The Compliment:

"You are very talented" (Looking appraisingly at one of my paintings)

I am aware that stating something graciously, like "How nice of you to say!" whilst smiling appreciatively, would be ideal, but this is a false response which is dishonest, and cannot be entertained. The true response is more along the lines:

Oh God! A vague, subjective compliment! Right!  Don't panic!  What does talented mean?  Special? Better? Clever? Blessed? Gifted? Lucky?  Well, I'm none of those...  I just work hard.  There are many more able and innovative artists than me, so she's clearly mistaken.  Hang on, perhaps she's more qualified to tell the difference than I am... I wonder what her credentials are?  I would ask, but that might sound rude.  No, I don't recognise her - I assume she's just 'being nice'.  Is there a hidden agenda here? Right - that means I should say something nice back, and perhaps explain. "Thanks, but I'm not really - It's just something I do to stop feeling overwhelmed or bored."  Hmmm.  That didn't seem to be very well received... Smile your stiff, fraudulent smile and move away.

In my experience, compliments are not the inert selfless gift that they are considered by most.  In my experience they are potentially dangerous ordnance, that should only be handled by qualified experts. If they do find their way into the hands of rank amateurs such as myself, they need to be accompanied by detailed instructions for their safe disposal or deployment.

This may seem a little extreme, but please do not assume I do not appreciate compliments.  They just need to be reasonably well informed and specific.  I will find it much easier to engage with a compliment if it offers some new perspective for me to consider, new data to assess.  Compliments I have heard, and preferred include: "I have seen lots of this type of thing, but none of them quite capture the urban setting as well...", I could walk into your skies" and, (my personal favourite) "I like the dirt and the lamp-posts".

(I can engage with the the first, by asking what other similar pictures they have seen and how they differ; the second, by investigating the reason for this: The geometry? The light? The colour? The third is a statement I cannot argue with - it is a simply stated observation and preference pertaining to an aspect of the painting I had actually planned.)

Of course when they become more thoughtful and specific, they are no longer mere compliments -  they have become meaningful acknowledgement, considered observation and intellectual appreciation.  And these, Euler and I know what to do with...

"Gentlemen, that is surely true, it is absolutely paradoxical; we cannot understand it, and we don't know what it means. But we have proved it, and therefore we know it is the truth." (Bejamin Peirce)

Learning with the Experts

When I explain to people that I have Aspergers, the response can be somewhat polarised.  I am met either with a knowing smile and a slow nod, (as if this is mere confirmation of a long suspected fact) or with utter consternation and denial.  However, both camps can easily be united in disbelief when I mention the fact that I work in a school.  With teenagers.  Front of Class. As a cover teacher.  And in my spare time, help out at my son's primary school and with the local Cubs and Scouts.

It's too noisy, surely?  Too much social interaction?  How can you empathise?  Communicate?  Too stressful? What? No timetable?  Constant change?  Different students and different subjects every lesson?  Nobody on the Autistic spectrum would choose to do this!

I suppose it does seem strange, but let me explain:  I like working with kids.  I prefer to spend my time talking to kids than to adults.  Kids make much more sense.  They are honest (to a fault, like me).  They prefer honesty, but if they do lie, then it can't be hidden (like me).  They are full of wonder and curiosity (like me).  Their potential knows no bounds. They are brave, have amazing resilience, humour and kindness.  They do not judge.  They can always change their minds.  They don't dismiss anything as boring or valueless without trying it out.  They feel everything keenly and react honestly, feeding back instantly.  I could go on and on.

I love learning - It's essential to me, and I will never stop.  To be around people who are as honest as me, as open as me, as full of wonder as me, as fallible as me, as energetic as me, as silly as me (as anyone who knows me and my penchant for giant inflatables can testify!), and as much fun as a barrel of puppies, too - well. It makes adults seem a stuffy lot..

Ah, but those of you who know my previous incarnation of 'Graphics Specialist' working in Environmental Engineering, will wonder why I haven't always worked with kids...  Well, I worked with scientists then, and in my book, that's almost the same thing:  Wonder... curiosity... lack of social sophistication... sound familiar?

Yes of course, it's exhausting, yes it can be frustrating, heartbreaking, infuriating, but at school and cubs, I can be myself with the kids, and I know where I stand with them.  They don't placate, humiliate, undermine, dismiss.  They praise when they are impressed, they criticize when they are not.  It is clear to me when I have inspired them, when I have upset them, when I have amused them, when I've made a difference to them, and I collect the experiences eagerly.  It is easier than being around adults, and I learn more from them than I can in adult company.  I am learning about social interaction as they do - It is more inspiring than anything I have ever done, and when I see them growing up and learning how to manage in the world, it gives me hope for myself.

Charley shows off his Viking ship homework

A little knowledge...

"We're all on the spectrum somewhere, aren't we?" I hear this phrase a lot from people who are well meaning, well-read and reasonably aware of Autism.  I used to accept it without question but, over time, my annoyance at the phrase grew until it was more likely to be met with angry disagreement.  People might as well have been saying: "Well it's nothing really, is it?"  or "It's no different to anything the rest of us have to put up with is it?" I have recently passed beyond this phase and now bask in the zen-like calm of someone truly at ease with the ignorance of others.  Too blunt?  Too judgemental?  Quite possibly. Let me explain:

It is widely understood that the Electromagnetic Spectrum comprises radiation of different wavelengths and frequencies.  They all have different characteristics, but they are all still radiation.  Most of us have heard of some of them:  Radio, Microwave, Infrared, Ultraviolet, X-Ray and Gamma Ray.  They are all invisible, but there is a small section in the middle of the Spectrum that is visible to the human eye.  The colours that make up this visible 'white' light are visible when white light is 'split' by a prism. This small part of the spectrum comprises most people's experience of light. We know the familiar colours of the rainbow and their characteristics - we see the effects of their wavelengths with our eyes as they are absorbed or reflected by different materials around us.  Everyone knows where they are with visible light.... Few ever feel the need to study the parts of the EM Spectrum which are less 'tangible'.  These are things that cannot be understood by looking in the same way we see visible light.

The Neurological Spectrum poses a similar problem - Everyone knows where they are with Neuro Typicals (NTs) even though they encompass a huge variety of different characteristics and behaviours. People with Autism, however, exist firmly in the less well known parts of the Neurological Spectrum; indeed we occupy our own 'Spectrum'.  As an Aspie, I find it hard to see things from the perspective of any one who doesn't share my little chunk of the Spectrum.  I now suspect it is practically impossible for most NTs to see things from my perspective.  How can someone who is NT begin to understand how someone with Autism experiences the world when the very tools we use to experience it are so different?  Try to convince an Aspie that you share their experience when you are NT, and you will probably meet some resistance.

In short - someone who is NT may share similar difficulties as someone with Aperger's, but the experience will differ enormously.  They may both get overwhelmed at a party, become tired and want to leave, but the Aspie may be so overwhelmed it brings on a meltdown....  They might both enjoy a walk in the countryside, but the Aspie might become so overwhelmed by the beauty around them that are driven to tears.  Stresses at home or work may get them both down, but the Aspie may be more likely to suffer a severe bout of depression.  Similarly, both may enjoy a well made film, but the Aspie may dissect it to the nth degree to fully appreciate the craftsmanship and recite volumes of observations to anyone available whether they watched it or not.

We all experience the same difficulties, ups and downs. How we experience them, and how they affect us however, is very, very different. It is clear to me now, that only the most exceptionally open-minded or highly perceptive individuals can look beyond their own NT experience and acknowledge that it is different for us... Which doesn't mean we should stop trying, of course!

To me it's a raven - to others a rabbit...  but I'm right (hee hee!)