Navigating the Event Horizon

Our lives are full of cycles:   We learn, we teach, we become wiser.  We gain confidence, we take risks, we learn moderation. Some cycles are repeated again and again as we age. We trust, we are disappointed or betrayed, we make better choices about who we confide in, or we don't.  These cycles of trial and error are the mechanism by which we learn to navigate our world, but when you remove the 'why' from these experiences, our ability to learn from them is compromised. If you don't recognise that your trust has been abused, rejected or betrayed, or do not understand the reason why, how do you make a better decision next time?  How do you protect yourself?

One particular cycle (trying and failing to get the outcome I desired, and blundering into exactly the same issue next time I tried) was interrupted when I got my diagnosis 7 years ago:  I learned about Asperger's and that lent me the understanding I needed to begin to extricate myself from the cycle.  I nearly fell back in when, after copious research, I realised that there were no apparent solutions to how Asperger's affected my life.  I had simply added one more step in my cycle:  Try and fail, but fully appreciate the impact on myself, and others before blundering into it once again.  I still didn't know why, and even if I did, I did not have the language, skills or support to try to improve things.

But I wasn't ready to admit defeat.  I decided to embrace the positives.  I decided to use my experiences to illuminate the little-understood world of Asperger's. - to provoke discussion and highlight issues.  I had some success, which allowed me to take the next step...  And when the invitation came, I accepted and I learned about a possible solution - a way to claim back a portion of my life that I had never realised was lost.  I began to co-present The Different Engine's Aspie TA workshops. I made new friends and eventually, the illumination spread to those around me, letting everyone see me more clearly, and I, them. I am no expert in Transactional Analysis - I have a basic vocabulary, but is is enough to enable dialogue, and consequently, understanding.

But life with Asperger's is rarely so straightforward....

One of the most painful aspects of living with Asperger's, is the way that huge, hulking misunderstandings can still come barreling out of left-field to knock you senseless and make you question your entire world view from the tiniest details to the broadest foundation.

Everyone suffers unexpected setbacks at sometime in their lives, no matter how they try to insulate themselves from disaster.  I myself have spent a lifetime, unsuccessfully trying to find ways to avoid getting hurt.  Enhanced understanding cannot cover every eventuality, and certainly cannot stop the dreadful emotional impact of misunderstandings when they happen.  So you explain yourself, people understand, you feel more relaxed and accepted, you take a chance and trust more.  In neurotypical people, there are numerous buffers (tests, if you like) that ensure that the risk is manageable; trust growing incrementally, allowing only the most worthy and compatible into the inner circle of genuine and mutual intimacy, where lasting harm could be done. This is not the case with Asperger's.

Asperger's not only means you are without the vast majority of these 'buffers', (meaning you are likely to risk far too much in one go), but also that you are likely to be unaware that this is happening until it is too late (leaving you totally unprepared for the disaster when it descends and utterly defenceless in its wake).

When I have encountered such disasters in the past, I have always responded to the appalling emotional and psychological pain they inflict by removing myself from everything and everyone involved immediately and permanently.  An over-reaction?  It may seem that way to a neurotypical, but I have a pitifully limited defense.  It is rare for me to trust, and rarer still that I relax in another's company.  So when it turns out that, in my enthusiasm to celebrate some of those rare relationships, I have unwittingly caused harm to them, my world falls apart.

 I suppose it is a nod to progress that I have not acted immediately on this occasion, despite the impact of this particular disaster being as painful as any I have encountered.  I need to know if this can be resolved, if my world view can survive, and whether I can live with that resolution, should it materialise. Running away and hiding from the pain is as attractive as it's ever been, but I will see this through. I need to know if it is possible to build mend bridges instead of burning them.  Sometimes, it seems, the only thing you can do when trust has let you down, is to trust that things will get better, and I'll emerge from this black hole.

If Hawking radiation can do it... maybe I can too.

Especially Interesting...

There are a number of well known characteristics associated with Aspies. (Those who know me personally will know how long it has taken me to reconcile my feelings about using the word "Aspie" but I suppose there is no denying that it takes less time to type.)

The media tends to focus on the easily characterised traits such as social awkwardness, capacity of long term memory, talents and 'Special Interests.' It is indeed the case that some are exceptional at maths; some can memorise huge quantities of numerical data (historical dates, the digits of Pi, train timetables etc.)  But we are not all savants or exceptional in the eyes of our peers.

I have 'Special Interests' like most Aspies.  Mine are numerous, but all share an important characteristic: They are have complexity and there is a lot of detailed information available to absorb from lots of different sources.  This means that when I research the subject I can do so exhaustively, and this can keep me busy for a great deal of time.  (Anyone hoping to intimidate me with a huge pile of repetitive detailed work is going to be disappointed.)  I have no control over what piques my interest - often they are subjects unlikely to come up in general conversation, and they are as likely to reflect my abilities or aptitudes as not - Theoretical Mathematics for instance.  My poor working memory for numbers means I will never be able to calculate anything but basic sums, but I enjoy reading at length about concepts like sets of infinities and imaginary numbers.

Those who know me will be aware that I will try to crowbar the subject of quantum physics into conversation at will (after all, it is relevant to every subject in some way!) or I may interject hopefully about the meaning of a prefix or common word, followed by a treatise on it's origin and evolution.  I have amassed an encyclopedic (if incomplete) knowledge of many subjects to various levels of detail. Sadly none of them are the subjects that work well in informal chatter.  Even when I talk about the weather, I feel bound to use the correct cloud classifications and wax lyrical about how global climate change is affecting El Niño.

Airing these interests in public can be problematic.  People can feel intimidated when unfamiliar with the subject and may seek to extricate themselves at the first opportunity.  This is usually the point at which my 'conversation assassin' (enthusiasm) leaps in, pinning the hapless participant until it becomes clear that they are no longer 'participating' or have left without my noticing their departure. Enthusiasm occurs either in a desperate attempt to reengage the participant, or simply because the temptation to blurt out vast sections of the knowledge, which brought me such pleasure to acquire, is simply too great... So, my sincere apologies to any of my victims and, if it's any consolation, I hope at least you learned something! (Commence squirming at my utter tactlessness!)

Hmmm - the infinite variety in atmospherics... 

Anxiety Rules (First posted 9th January 2016)

I worry about things a lot.  This can make me seem pessimistic and paranoid, but it is something I struggle to control.  It’s something that has been with me for as long as I can remember. Whenever I had an unsatisfactory exchange with a family member, another student, or teacher at school, (a misunderstanding, perhaps, or failure to notice and comment on a new haircut) I would worry for days, if not weeks about it, literally losing sleep over it, and it would often lead to my avoiding the person in question thereafter.  

Equally, if I had a pleasant and successful exchange, (a long conversation with someone who shared one of my interests, for instance) I would soon begin to worry about the potential for a misunderstanding (on my part) to bring about the end of a burgeoning friendship, leaving someone I cared about hurt and confused.  I am blessed with a singularly vivid imagination and the graphic nightmares that accompany this anxiety are cinematic in nature.  This anxiety, this self-doubt has never left me and still colours every exchange.

This fear is an issue that is well known among people with Asperger’s, and it can be crippling.  I am lucky in that I have people to help me to find the courage to keep trying: I have the support and understanding of my wonderful husband who’s outgoing personality continues to put opportunity after opportunity for socialising in my path.  I also have the added incentive to be a strong and confident role model for my son.

Decoding everyday exchanges in a purely intellectual way is extremely hard work and riddled with danger.  (This is the reason for my usual frown of concentration; putting on a smile is just another thing I have to remember.)  I work in a large school and have to tackle hundreds of such exchanges every day.  Granted, it is easier with children, as they are usually more honest, predictable and transparent in their exchanges than are adults. To engage at all, I have had to become a student of language myself (researching colloquialisms, idioms, turns of phrase, body language and the like.)  Unfortunately, I didn’t realise until after I had embarked on this course of action, that learning to ‘navigate’ creates a vicious circle of its own:  The better you cope, the less understanding people show when things go wrong.  The longer you can keep up; the more ‘normal’ you appear, the more likely that misunderstandings will be judged as willful or deliberately hurtful.   It is EXHAUSTING.  

The endlessly sophisticated and ingenious intricacy of human communication navigated intuitively by neuro-typicals is mind-boggling.  Most people can have no awareness of the sheer volume of observations, decisions, judgments made,  hints, clues, signals given in a matter of seconds during a casual chat.  It is an enormous barrier to understanding those of us who do not possess this intuition.   It was this realisation that led me think more about the handful of people that I can truthfully call ‘friends’, and appreciate the patience they show and efforts they make in merely putting up with me!  Not giving myself enough credit, you think…?  No.  I have no illusions about that. I am patently aware how different things might have been…

Anyone with Asperger’s will know about the ever-present companion to anxiety: Depression.  It is a constant battle not to give up the effort, close the door and surrender to self pity, exhaustion and the inevitable spiral into depression.  I have had many periods of deep, damaging depression in my life, and I am immensely proud and pleased that I have not had a major episode for the four years since my diagnosis.

I am sorry if this post seems to concentrate too much on the negative, but that is a necessity when you discuss feelings like fear, doubt, anxiety and depression.  They are an ever-present part of my reality.  Don’t worry! I will write another post shortly about some of the amazing gifts and joys that also share my everyday life.