The Trust Relationship Between this Workstation and the Primary Domain has failed...

I can only apologise for the delay in posting my blog…  I wrote one for February and also for March.  I will post neither as, looking back, they were not my thoughts.  Suffice it to say that, (due to my condition (chronic migraine and allodyna) and the medication I have to take in order to function) my personality, and consequently, my outlook were altered both pharmacologically and by sleep deprivation.  I have no wish to share these experiences, and I don’t think hearing my woeful rants written during that time will be of any benefit to anyone, least of all, me. 

Despite the weather and disruption of March, things have recently become much more settled for me.  The situation at work (which was responsible for many of the difficulties of previous months) has been satisfactorily resolved.  When things looked bad, I applied for another job and was invited for interview, which I attended.  Before they finished their deliberations, the problems at work had evaporated, and I withdrew my application - this time for the right reasons. (The hours didn’t suit; the commute was a problem…  It simply wasn’t worth the move, despite my delight at the possibility of working in graphics once more.)  There were emergent opportunities in my job for including some graphics and marketing work… things were looking up.

It got me thinking about ageing.  I will be 50 later this year, and I think I am finally starting to feel comfortable in my own skin.  I still have no well-formed sense of self, but I am much more likely to consider my own needs when making decisions.  I am happy with my current work situation.  So, is this really just a plateau in the profile of peaks and troughs?  I think not. 

A little while ago, I was introduced to Erikson's theory of the Psychosocial Stages of Development.  I suppose I approached in much the same way as someone would an astrological forecast – fitting my experience to the categories and feelings, but I was quite sure, that I had not come out of this process unscathed…

There is nothing like the first flickering shadow of one’s own mortality to make you reassess your priorities.  Life, it seems, is too short.  I have had an interesting and varied work life.  I don’t need a highly paid, high pressure job.  I don’t want a long working day and short holidays so I hardly see my son.  I have other things queuing up to fill my time:  I have a book to finish with my son;  I am a director of The Different Engine; I have historical events to attend; I have paintings to paint, music to listen to, et cetera and so on…

Perhaps it is this age-earned ‘wisdom’ that was responsible for my decision not to post my previous two blog entries… The confidence to wait is something I have always felt I lacked in the past – my need for additional time to process probably played into my anxiety for not responding quickly enough, and fear; my tendency to make panicked decisions.  With hindsight, the waters were always calmer than they seemed at the time; the tempest exaggerated or wholly imagined.  

Perhaps this is the wisdom of age, or maybe a by-product of deepening trust. Trust is a fragile thing, but I have followed some excellent advice a friend gave to me several years ago: Surround yourself with kind people.   Trust is fragile, but I now realise that it gets stronger when maintained.  I have acquired a very select but extremely high quality group of friends over the last few years, and I trust them as much and more, than I have trusted anyone.  But I nearly walked away from my job when I perceived that my trust had been betrayed...  But trust must be maintained in the face of apparent betrayal, to be sure there is no solution to be achieved, no corner to be turned... Because I waited, a solution was found, an apology and a commitment made and trust was renewed.  It made me realise  just how many times I may have turned away too soon....

There is a central principle in TA. Eric Berne initiated the principle within Transactional Analysis that we are all born 'OK' — in other words, good and worthy. Frank Ernst developed these into the OK matrix, (also known as the 'OK Corral' after the famous 1881 Tombstone shootout between the Earps and the Clantons).

I realised some time ago that, for the most part, I have spent my life in the two left hand boxes, and this position is indicative of a complete lack of trust (in myself and others).  The title of my blog is "The trust relationship between this workstation and the primary domain has failed" and is the only surviving element of my discarded rants of last month.  You can imagine my metaphorical interpretation of this innocent computer error message - it was very much in line with the bottom left hand square of the matrix:  “Everything is broken and it won’t get better.”

Now that things have settled somewhat and my trust is restored, I can put my title where it belongs which is in the top right hand square of the matrix:  “Ha! That error message is a T-shirt, right there!  I’ll call IT and they’ll come and fix it”. 

The best of times...

It's that time of year again, and I had hoped to have something heartwarming, insightful and completely out of character for a logic loving, systematic, no-nonsense Aspie, to share with you all.  My Christmas tree is still up, so I've thrown in some Dickens, and have sprinkled it with a comforting amount of efficiency in the form of a 'round-up of the last year' so I haven't completely thrown caution to the wind...

I have never read much Dickens, or Austen, Tolstoy or any of the other great writers who's chief delight was in spinning tales of the human condition and the intricacies of complex family or romantic relationships.  I've tried a few times, but I get lost quickly - there is little common experience here to keep my attention.  That doesn't mean I cannot appreciate the masterful and inspiring skill demonstrated by these giants of literature in smaller doses - they are, after all, eminently quotable.

"It was the best of times, it was the worst of times, it was the age of wisdom, it was the age of foolishness, it was the epoch of belief, it was the epoch of incredulity, it was the season of Light, it was the season of Darkness, it was the spring of hope, it was the winter of despair…" 

When I turned my mind to writing my personal round-up of 2017, it was this quote from Dicken's 'A Tale of Two Cities' that my mental Rolodex fell open on.  2017 has been a year of contrasts...

The year began with struggle.  I was desperately trying to manage an increasingly stressful job, (not, difficult, highly responsible, very important or suchlike... just really, unnecessarily stressful).  This was being made more difficult because I was trying to cope with debilitating migraines and equally debilitating side effects from unhelpful drug treatments.  There was, I noticed, an uncomfortable familiarity about the way I was treated as a migraine sufferer...  The lack of understanding about the condition, the isolating effect, the ineffectual and sometimes harmful treatments, the lack of available help:  I'd been down this path before...

But, (I said, boldly starting a paragraph with a conjunction, and including a split infinitive in the explanation) another path was being forged at the same time. This was taking place thanks to the tireless enthusiasm of a small group of people I have come to think of as Friends.  (I feel the need to pause and explain at this point, for those of you who might skip over the significance of this statement.  Naming someone as a Friend, for an Aspie, is akin to bestowing the Nobel Prize.  Make no mistake - great things will be expected. (I write this with the confidence of someone who knows their Friends will see the humour here - which is the most delightful part!))

The formation of our fledgling Charity "The Different Engine" has been a difficult, time consuming, fiddly, awkward, tough task.  And it has been an absolute pleasure to be a part of it.  At the start, thanks to the migraines, I could barely look at a computer screen, but now I have nearly finished our new website: TheDifferentEngine.net.  We have our workshops for next year set up, and interest in what we are doing is growing fast.  Leaflets, articles, books and conference appearances are in all the pipeline. I am learning more about myself and how Asperger's effects the way I experience the world around me, every day, and thanks to Rich Hall and Peter Fowerdew's Aspie TA, I can share this learning with my husband, son, students and anyone else who wants to know about it.

Without it, I would not have had the confidence to leave the harmful environment of my last job (because I wouldn't have recognised what was doing the harm).  I would not have had the courage to talk to prospective employers about my Asperger's, (for fear they would not understand) and they would not have realised the breadth of what I could bring to the role (I would not have had the language to explain).  The essential support and understanding of friends and family that I have relied upon through this difficult year would have been drastically reduced, were it not for the the fact that they have joined me on this journey, and we all now have access to this common language.  After 3 years of investigating this tool and its applications, it still amazes me that writing about it can still raise a tingle of excitement and a hitch of breath.

A last minute meeting, recently, proved to the icing on the cake for me...  I had agreed to come along to a meeting arranged by my friend Rich Hall, with a representative from an Autistic support organisation from which we had we both received support over the years.  I wasn't sure if there was an agenda, or if we were just testing the waters, but I listened as Rich spelled out the key stages of our work over the past few years.  Before long, my enthusiasm got the better of me and I there I was:  Waxing lyrical about my experiences and the way my cynical viewpoint had been changed irrevocably by the efficacy of these techniques and methods...  Our audience was somewhat taken aback by what we had achieved in the time since our previous acquaintance, and he spoke at length about his concerns about the direction of Autism research in the international arena.  It was heartening then, to say the least, to hear his positive response to our work - developed by NTs and Asipes together.  This is the most important type of endorsement in my mind - that of people who have lost faith in the systems that are designed to help people like us (most of them researched and designed by NTs in isolation, or using NT designed and interpreted research from autistic contributors)...  If they can see the benefit and scope of what we are doing, then even my appalling self-doubt cannot put up a sufficient argument.  'Nothing about Us, without Us' is one approach, but we chose to look beyond 'Them and Us' to the potential that comes from truly understanding the strengths of diversity  from both perspectives.  What we have achieved could not have been done by NTs or Aspies working in isolation.  We have tackled the barrier itself, and it has toppled.

2017 has indeed been a year of contrasts - illness and healing, leaving a job and gaining new employment, giving in and taking the plunge, despair and hopefulness, self-doubt and self-belief, trying to help and allowing myself to be helped.  Not as eloquent as Dickens, nor as dramatic, but I feel this year marks an important landmark.  "The Different Engine" is about to make a world of difference to a world of people, hopefully, two worlds.  I am very proud to be a part of it.

An illuminating experience (or, The Light at the End Of The Tunnel has had its Chance..)

I think I must have heard every possible incarnation of the phrase: "There is light at the end of the tunnel" over the last 40 years or so.  From concerned family members to well-meaning therapists, the all encompassing message that persistence reaps a happy ending is a stalwart of the optimist's arsenal...  I am sorry if I sound less than optimistic - The light at the end of my personal subway has been obvious by its absence for the entire span of operations, but I suddenly find myself part of a team that has been busily installing skylights along the length of the entire system...

My own network of dark and seemingly endless tunnels had been explored exhaustively and no prophetic light could be found, perhaps because there didn't appear to be an end to the tunnel.  I may have managed, through trial and error, to learn to walk the tunnels without blundering into the walls too often but fear of the dark, so to speak, is ever present and unyielding.  I may also have had company in the dark - a trusted companion  who held me up when I stumbled, but we were both, still in the dark.  In my despair, I reluctantly conceded that this was my reality many years ago, and that it would never change.

I have no precedent, therefore, for the fact that this reality has changed, and I feel oddly, but pleasantly, adrift.  I talked some time ago, about my wish to break down the barrier that still existed between my husband and I, despite our 30 years of amicable partnership.   He is NT and we have never shared an understanding about how the Asperger's mind differs from the NT. Until now.

My husband recently attended Rich Hall and Peter Flowerdew's course on Transactional Analysis for therapists and Aspie clients and their families. Again, I was helping out as co-presenter with my friend, Rich.  I had hoped, that after 3 intensive days of explanations and discussion, my husband would acquire some insight into what life is actually like for me, and Aspies generally. Indeed, he acquired this insight and more:  He also learned a new appreciation of his own personality and communication style, and how it colours all of his interactions. He understands, at last, the extent to which our worlds differ, and that, given the right circumstances, they can converge.  In short, the last barrier to our communication has been lifted, and we can now be wholly 'real' with each other, in a shared space, with no concerns about treading blindly on each other's toes.

My 11 year old son paid us the simplest of compliments, when he heard his Dad and I talking after the course:  He said "Dad, why are you talking like Mum?"  Such a small thing, but it was the first 'independent verification' that we were finally speaking the same language.

My vocabulary seems insufficient, and my thoughts too cluttered to clearly express the impact of this on our lives.  I hope that this stupefied state will leave me soon, and I can write more clearly about the implications of this profoundly positive change.

The Great Convergence:  Galaxies, NGC 2207 on the left, and IC 2163 on the right, approx. 80 million light-years from Earth (Hubble Space Telescope image) Not so much a collision, as a 'coming together'.

Stranger in a Strange Land

My world is changing.  I suppose this simple statement is open to many different interpretations but, I assure you, my world has never shown any signs of changing in the most important way.  Until now.

I speak of the gradual unveiling of the NT world that is accompanying my deepening foray into Rich Hall's and Peter Flowerdew's particular brand of TA (Transactional Analysis). The reason why my usual cynicism about the possibility of such change is absent?  Because this actually works.  It makes sense to Aspie and NT alike.  It provides common ground where before, there was none and, unlike other 'therapies' and 'techniques', it is accessible to everyone.

I am experiencing a process of profound revelation, unfolding itself in exquisite slow motion, one realisation at a time.  I am using it to shed light on the most inaccessible constructs of my life - places where I have feared to tread, because of their fragility:  My sense of self, my professional persona, my relationship with my husband and son.

I have always sought empirical evidence for the veracity of all things, and this form of TA was in no way immune to my exacting standards.  The first course I attended was filled mainly with participants who were professionals in the field of psychotherapy.  Although the beneficial effect upon the attendees was plain to see, the full potential was not clear to me until I attended the most recent course.

Rich and Peter actually ran two courses simultaneously - one written for NTs (professionals and non-professional) and one, a 'translation' for Aspies (from similarly varied backgrounds).  Peter is uniquely skilled to incorporate Rich's insights and to see the obstacles to communication between the NT and Aspie worlds, and he expertly navigated his way though, dealing with all manner of input from the various perspectives of the mixed group.  Their sincerity and confidence in the findings, and the efficacy of their application were borne out by the changes I saw played out in that room over three days.

Day One saw a large group of people, demonstrably representing every part of the AQ (Autistic Quotient) scale, from empaths (like so many of the therapists) to extreme systemisers, (like Rich and I) all butting heads and struggling to understand and to be understood.  No-one had felt comfortable (including Rich and Peter, I suspect) and everyone had mixed feelings about Day 2.  However, half way through the second day and it was already evident that something in the dynamic of the group had changed.  A dizzying parade of observations, insight and demonstrations from Rich and Peter generated meaningful questions and heartfelt answers from NT and Aspie alike. It was exhausting and inspiring.

At the start of Day 3, the enthusiasm in the group was palpable...  Everyone had identified the common ground and the potential for this gift of translation.  The excitement was obvious:  Here was the start of real understanding:  The promise of progress, the possibility of connection, a beginning of real change.

I have waited for the 'welcome' that Peter speaks so passionately about, all my life.  It seems so close now, I feel I can almost taste it.  I cried when my (NT) husband asked if he could attend the course. We have a good marriage (25 years, next year) but there has always been a wall between us, that I have longed to remove.  If we can really connect with each other after all these years - there is hope for us all.  I think now, that perhaps that welcome has been there all along - just waiting to be discovered....

The Cosmic Microwave Background Radiation Map - It was always there - One scientist predicted it but couldn't find it - another found it, but initially dismissed it as interference caused by messy nesting pigeons in their radio receiver...  Turned out to be the long-awaited evidence of the Big Bang....

A special sort of kind

I heard some excellent advice recently; this from someone who's judgement I have come trust in a remarkably short time.  He said : "Surround yourself with kind people."  This chimed with another piece of advice I read many years ago; a little snippet of wisdom from Ashleigh Brilliant: "Be kind to unkind people - they need it the most."

A little background....  A friend (and I use that phrase accurately for the first time in many years) was involved in a workshop/seminar about transactional analysis (TA)  which will probably be meaningless to many, but not so to psychotherapists of any ilk.  I first came across the idea years ago, after a recommendation from a psychiatrist led me to Eric Berne's book "The Games People Play" which seeks to demystify the mechanics of social interaction.  It did so, firstly, by identifying "Ego States" such as the 'Parent', the 'Child' and the 'Adult'.  The book was interesting, but I found the practise of using the theory to structure my interactions difficult and tiring.

I looked at the slides my friend was hoping to use during this workshop, and found them interesting. However, I didn't really see anything groundbreaking, mainly because I assumed, (incorrectly) that this was the same sort of thing as the ideas set out in Berne's book all those years ago.  I had recently had an exhibition of my work in central Bristol, and the Evening Post had done a story about it, with regard to Asperger's.  My friend asked to borrow a couple of pictures to take to his workshop to demonstrate the detail-oriented and systemising nature of the Asperger's brain.  I agreed and offered to help in any way I could at future workshops.

The workshop was a great success, and another was swiftly organised.  I was invited to attend in the capacity of co-presenter, which inferred a level of participation I wasn't sure I was ready to provide, but I was intrigued and went along...  I'd offered my help, after all.

That's how I ended up in a comfortable study, discussing TA with two PHD engineers, both trained in TA and one of them; a leading practitioner in using TA as a tool for psychologists working with Asperger's clients.  I could count on one hand the number of NT people who I have met in my lifetime with a detailed understanding of the nature and effects of Asperger's.  To meet someone who (despite being NT) has such an insight into the neurological differences, and the consequences of life with Asperger's, is exceptional.  To attend the workshop created by Rich Hall and Peter Flowerdew, and see the theories explained, and see them translated for NT and Aspie alike, is profound.  It is this inability to understand one another's worlds that is the root of much of the anxiety and frustration surrounding NT/Aspie communication.

I should pause here, to acknowledge the overwhelming kindness I experienced during this weekend. I would say it was a rare privilege, but that would be incorrect, as I have never experienced the like: A room of people who were genuinely interested in my experience, who were sensitive to my sensitivities and appreciative of my honesty.  They called me brave and extraordinary, and made me believe it.  They were a special sort of kind, and I include Peter and Rich in this description.  I was truly moved.

It's taken me a long time to process everything I saw and learned at the workshop, and I'm still absorbing and evaluating some of it.  However, it is clear to me now that the key to NTs and Aspie's understanding each other is the architecture of language.  This workshop centres on the different world-views of Aspies and NT and appears to cut straight to the key differences in the way we experience - everything.  It manages to translate these theories so that they can be used by NT therapists who are desperate to better understand and help their Aspie clients.

I won't go into details, as I am no expert, but one part in particular struck a chord that has kept me thinking on it ever since.  That is the striking realisation that the traditionally understood "Ego State" Models differ markedly for Aspies and NTs.  One particular slide which made a lasting impression, was that of a diagram showing the transaction of  conversation that I recognised from any number of exchanges with ex-employers.  The Parent and Child ego states take much from learned past experiences, and the Adult state is purely based in the present.  The way it is expected to go sees the Parent (Boss) asking the Child (employee) to do a task.  The Child is expected to respond to the Parent, (a parallel interaction) however, in Aspies, it is the Adult that responds, confusing the now 'Disparaging Parent' (Boss), and eliciting an assumption of a response from a 'Petulant Child' (employee being difficult and disrespectful), and not the 'Adult' state response it actually was. The startling connection that has made here, is that there really is no Parent or Child ego state for Aspies.  We really only interact in the Adult state.  This of course would cause enormous confusion in social interaction, and clearly does.  It was immediately clear to me that is is the dynamic behind many of the failed interviews, premature redundancies and abortive social interactions that have plagued my entire adult life.

This is surely worthy of much study, and as if to prove the point, workshop bookings are increasing exponentially.  I am keen to pursue this and help in whatever way I can, as it seems to be a huge leap along the way to mutual understanding between Aspie and NT, and promises more natural interaction without the expectation of the Aspie conforming to NT models.

To put it another way: "There is common ground, it's just not where we thought it was, so put down the net and the cattle prod, and let's talk..."  And it's the kind people who will oblige first...

Who am I to judge?

I was recently received a rather unexpected invitation from my old Art Club.  I was asked if I'd like to come along and be judge for their Annual Art Exhibition.  Oh, and by the way, if I could see my way to providing a short workshop on pastel work at a later date, then that would be lovely, too.  I agreed straight away; flattered and surprised, as I always am when someone unexpectedly acknowledges my existence in a positive way...   Of course, once I had sufficient time to really process the request to  judge the artworks, I began to panic:  Questions like "I'm not a professional artist... how am I qualified to judge?"  I was a member here just a year or two back... how am I any better now?" and "I don't know anything about art" all clamoured for the top reason why I should renege on my agreement.

I have a long and illustrious history of agreeing first, considering the repercussions after, and then panicking at an exponential rate at the event draws closer.  It is, I have learnt, an excellent way to experience new, sometimes challenging situations that I would not otherwise attempt.  Sometimes I agree to things that don't benefit me in any way, and have, in the past, agreed to things that have been damaging to me.  It's a bit high-stress, I'll grant you, but if I start thinking about something, then you can forget it.  I should pause, about now, to apologise to my long-suffering husband who has borne the brunt of many such situations and who has always stalwartly seen me through the frantic run-up to such events.

(I should also let you in on the chuckle I'm currently having at my own expense - I just spent 20 minutes looking for a suitable alternative to 'run-up' in several online and hard copy thesauruses, and am now late leaving work.  See what I mean about the thinking?)

I knew I couldn't back out, and I really did want to visit my old club...  I had first joined at the suggestion of psychologists running the post-diagnosis group I attended, with a view to engaging in 'structured socialising', which is much easier than the usual method (which I usually refer to as 'cold calling').  Everyone at the club was pleasant and welcoming, and they made it much easier than I had any right to expect.  I had wanted an opportunity to thank them for this, and here it was...

I wrote a short speech explaining what the club had meant to me, and wrote suitable appropriate generic paragraphs filled with glowing praise for all the various elements of what I considered the fundamentals of quality art (thank goodness for that single year of A level History of Art I completed, and Mr Berger for 'Permanent Red'!), and left gaps for additional information I would fill in when I had seen the exhibition.  I found out the categories for which I was expected to find winners and runners-up.  My intention was to leave as little to do as possible on the night. (Spontaneity is a minefield for me with my slow processing for social interaction... You will not get an honest impression, as you might expect from an NT being spontaneous... you'll just get a carefully rehearsed show - I need notice to be spontaneous!)

On the night, I found the decision-making easy, as expected:  I am nothing if not practical, and my objectivity, and lack of bias goes without question.  I asked my husband to review my choices, simply to make sure I had not inadvertently chosen pictures too similar in style or by the same artist.  I gave my speech, adding comments relevant to the individual works, gave out the prizes, shook hands, finished my wine, and that was it. Done.  And everyone got out alive.

I am patently aware that many of these situations actually pass without incident, and I am equally aware that most of the people around me can see the potential for this clearly.  It pains me to confess that I simply cannot see things from this perspective until after the event.  Then, everyone's' confidence becomes perfectly clear, and I feel terribly foolish.  You'd think I'd learn, wouldn't you? The problem is: I don't.  Because I'm not NT.  No matter how many positive outcomes I have, this never gets any easier. I never become more assured of success, but I do notice one change:  I allow myself to be talked into things that might be good for me that little bit more often.  A small, incremental step, but nevertheless, in the right direction...

Interestingly, the thought of carrying out an hour's workshop in front of 20 people watching my every move and interrogating me on my technique doesn't bother me at all...

Capacity building

I recently travelled to Egypt for a diving holiday.  Seems such a straightforward and harmless statement doesn't it?  I went on holiday - just popped onto a plane and got off in another country, got my transfer to the accommodation and Bob's your uncle!

Here's how my experience really went:

We piled into the car at 4.30pm on Good Friday and took to the road.  Apparently, the rest of the UK did, too.  Even though I wasn't driving, the ensuing 2 hours, 45 minutes of motorway driving left me exhausted:  The driving conditions were poor, with rain, darkening skies and roadworks and breakdowns everywhere.  When travelling at speed, I find the rate of visual input completely overwhelming, but I am also plagued with anxiety which furnishes me with constant, detailed and realistic visualisations of potential incident after potential incident.  The truly exhausting part was having to hide all this from my son, so that he wasn't affected by my anxiety.

Fortunately, I have had plenty of experience of staying in hotels (required in several of my previous jobs) so I am not as affected by strange accommodation as I might be.  The grossly decorated lobby with its alarmingly squishy carpet was airy and open plan, so I was able to relax somewhat - only the constant visualisations of horrific plane crashes from the neighbouring Gatwick Airport to concern myself with...

An early morning rise for check-in saw the return of my favourite coping mechanism:  Panic humour. Being hyper aware with anxiety means excellent comic timing, and there was a wealth of material in peoples' reaction to the ludicrous management and staffing in the check-in queues...  A welcome distraction from the looming flight.  By the time we entered the departures lounge and it's wealth of noisy, smelly, crowded food outlets, I was exhausted and staring at the joins in the flooring materials whenever possible.  Still aware of the importance of 'staying positive', I kept up the cheery exterior and focused on my son, who was taking everything in his stride, considering it was his first trip abroad... only my husband was aware of my mounting anxiety.

The bus journey to the plane seemed to take forever - showing every possible angle of the plane that was to be our transport to Egypt.  I forced myself to endure it, inwardly chanting things like "no, the rivets are supposed to look like that", "don't look at the engines" and "you don't know anything about what well-maintained landing gear looks like", and trying to remember air travel versus air accident statistics to put my mind at rest.  This self calming continued on board - "they look competent".  "At least the pilot seems mature"...  The facade nearly slipped when my son insisted I sit next to him in full view of the tiny window for the 5 hour journey.  A matter of minutes later, I found myself in the ridiculous position of 'whooping' for my son's benefit at the excitement of the take off, whilst simultaneously crushing my husband's hand in terror!

As soon as we were allowed, I got out my chosen book and put on my mp3 player at top volume, determined to distract myself from anything that might remind me that I was in a plane.  Sadly, my book choice could have better, beginning as it did, with an explosion at an airport...  Luckily, my son's tablet battery lasted almost the entire flight, so I didn't have to keep up the facade for him, but my husband's hand suffered every time there was a little turbulence...

The next five hours are, thankfully, already fading from my memory - a nauseating cycle of anxiety, trolley avoidance, speculation and visual scenarios until our imminent arrival at Hurghada was announced. Any relief was short lived as figures for the statistical likelihood of failures on landing began whizzing though my head, despite my understanding of the overall safety of air travel.  After a bit of waiting around, security checks and baggage collecting, we made our way to the exit to meet our transfer. I was practically a zombie by now, all my coping mechanisms exhausted, so the hour and a half break-neck drive to our destination (with no seat belts and a tendency for our alarmingly young driver to drive at on-coming vehicles even when blinded by their full beams) passed relatively quickly.

I did not sleep for the next 3 nights.  This seems to be as a result of the anxiety of this type of travel - I usually just crash after too much social interaction - sleeping for longer than usual, but foreign travel requires another magnitude of effort.

The journey back was somewhat less stressful, buoyed as I was, by having survived the journey there!   Why put myself through it?  Well this isn't simply a fear of travelling...  I know it will improve, as everything does, with familiarity - my capacity for dealing with travel will improve.  It is only now that my son is old enough to have qualified as a diver that we can all go together.  I am immensely pleased to be a diver and able to see the amazing sights under the Red Sea, as the memories generated by the holiday in between these terrifying episodes have to be amazing to justify the effort!

A little knowledge...

"We're all on the spectrum somewhere, aren't we?" I hear this phrase a lot from people who are well meaning, well-read and reasonably aware of Autism.  I used to accept it without question but, over time, my annoyance at the phrase grew until it was more likely to be met with angry disagreement.  People might as well have been saying: "Well it's nothing really, is it?"  or "It's no different to anything the rest of us have to put up with is it?" I have recently passed beyond this phase and now bask in the zen-like calm of someone truly at ease with the ignorance of others.  Too blunt?  Too judgemental?  Quite possibly. Let me explain:

It is widely understood that the Electromagnetic Spectrum comprises radiation of different wavelengths and frequencies.  They all have different characteristics, but they are all still radiation.  Most of us have heard of some of them:  Radio, Microwave, Infrared, Ultraviolet, X-Ray and Gamma Ray.  They are all invisible, but there is a small section in the middle of the Spectrum that is visible to the human eye.  The colours that make up this visible 'white' light are visible when white light is 'split' by a prism. This small part of the spectrum comprises most people's experience of light. We know the familiar colours of the rainbow and their characteristics - we see the effects of their wavelengths with our eyes as they are absorbed or reflected by different materials around us.  Everyone knows where they are with visible light.... Few ever feel the need to study the parts of the EM Spectrum which are less 'tangible'.  These are things that cannot be understood by looking in the same way we see visible light.

The Neurological Spectrum poses a similar problem - Everyone knows where they are with Neuro Typicals (NTs) even though they encompass a huge variety of different characteristics and behaviours. People with Autism, however, exist firmly in the less well known parts of the Neurological Spectrum; indeed we occupy our own 'Spectrum'.  As an Aspie, I find it hard to see things from the perspective of any one who doesn't share my little chunk of the Spectrum.  I now suspect it is practically impossible for most NTs to see things from my perspective.  How can someone who is NT begin to understand how someone with Autism experiences the world when the very tools we use to experience it are so different?  Try to convince an Aspie that you share their experience when you are NT, and you will probably meet some resistance.

In short - someone who is NT may share similar difficulties as someone with Aperger's, but the experience will differ enormously.  They may both get overwhelmed at a party, become tired and want to leave, but the Aspie may be so overwhelmed it brings on a meltdown....  They might both enjoy a walk in the countryside, but the Aspie might become so overwhelmed by the beauty around them that are driven to tears.  Stresses at home or work may get them both down, but the Aspie may be more likely to suffer a severe bout of depression.  Similarly, both may enjoy a well made film, but the Aspie may dissect it to the nth degree to fully appreciate the craftsmanship and recite volumes of observations to anyone available whether they watched it or not.

We all experience the same difficulties, ups and downs. How we experience them, and how they affect us however, is very, very different. It is clear to me now, that only the most exceptionally open-minded or highly perceptive individuals can look beyond their own NT experience and acknowledge that it is different for us... Which doesn't mean we should stop trying, of course!

To me it's a raven - to others a rabbit...  but I'm right (hee hee!)

Anxiety Rules (First posted 9th January 2016)

I worry about things a lot.  This can make me seem pessimistic and paranoid, but it is something I struggle to control.  It’s something that has been with me for as long as I can remember. Whenever I had an unsatisfactory exchange with a family member, another student, or teacher at school, (a misunderstanding, perhaps, or failure to notice and comment on a new haircut) I would worry for days, if not weeks about it, literally losing sleep over it, and it would often lead to my avoiding the person in question thereafter.  

Equally, if I had a pleasant and successful exchange, (a long conversation with someone who shared one of my interests, for instance) I would soon begin to worry about the potential for a misunderstanding (on my part) to bring about the end of a burgeoning friendship, leaving someone I cared about hurt and confused.  I am blessed with a singularly vivid imagination and the graphic nightmares that accompany this anxiety are cinematic in nature.  This anxiety, this self-doubt has never left me and still colours every exchange.

This fear is an issue that is well known among people with Asperger’s, and it can be crippling.  I am lucky in that I have people to help me to find the courage to keep trying: I have the support and understanding of my wonderful husband who’s outgoing personality continues to put opportunity after opportunity for socialising in my path.  I also have the added incentive to be a strong and confident role model for my son.

Decoding everyday exchanges in a purely intellectual way is extremely hard work and riddled with danger.  (This is the reason for my usual frown of concentration; putting on a smile is just another thing I have to remember.)  I work in a large school and have to tackle hundreds of such exchanges every day.  Granted, it is easier with children, as they are usually more honest, predictable and transparent in their exchanges than are adults. To engage at all, I have had to become a student of language myself (researching colloquialisms, idioms, turns of phrase, body language and the like.)  Unfortunately, I didn’t realise until after I had embarked on this course of action, that learning to ‘navigate’ creates a vicious circle of its own:  The better you cope, the less understanding people show when things go wrong.  The longer you can keep up; the more ‘normal’ you appear, the more likely that misunderstandings will be judged as willful or deliberately hurtful.   It is EXHAUSTING.  

The endlessly sophisticated and ingenious intricacy of human communication navigated intuitively by neuro-typicals is mind-boggling.  Most people can have no awareness of the sheer volume of observations, decisions, judgments made,  hints, clues, signals given in a matter of seconds during a casual chat.  It is an enormous barrier to understanding those of us who do not possess this intuition.   It was this realisation that led me think more about the handful of people that I can truthfully call ‘friends’, and appreciate the patience they show and efforts they make in merely putting up with me!  Not giving myself enough credit, you think…?  No.  I have no illusions about that. I am patently aware how different things might have been…

Anyone with Asperger’s will know about the ever-present companion to anxiety: Depression.  It is a constant battle not to give up the effort, close the door and surrender to self pity, exhaustion and the inevitable spiral into depression.  I have had many periods of deep, damaging depression in my life, and I am immensely proud and pleased that I have not had a major episode for the four years since my diagnosis.

I am sorry if this post seems to concentrate too much on the negative, but that is a necessity when you discuss feelings like fear, doubt, anxiety and depression.  They are an ever-present part of my reality.  Don’t worry! I will write another post shortly about some of the amazing gifts and joys that also share my everyday life.