The best of times...

It's that time of year again, and I had hoped to have something heartwarming, insightful and completely out of character for a logic loving, systematic, no-nonsense Aspie, to share with you all.  My Christmas tree is still up, so I've thrown in some Dickens, and have sprinkled it with a comforting amount of efficiency in the form of a 'round-up of the last year' so I haven't completely thrown caution to the wind...

I have never read much Dickens, or Austen, Tolstoy or any of the other great writers who's chief delight was in spinning tales of the human condition and the intricacies of complex family or romantic relationships.  I've tried a few times, but I get lost quickly - there is little common experience here to keep my attention.  That doesn't mean I cannot appreciate the masterful and inspiring skill demonstrated by these giants of literature in smaller doses - they are, after all, eminently quotable.

"It was the best of times, it was the worst of times, it was the age of wisdom, it was the age of foolishness, it was the epoch of belief, it was the epoch of incredulity, it was the season of Light, it was the season of Darkness, it was the spring of hope, it was the winter of despair…" 

When I turned my mind to writing my personal round-up of 2017, it was this quote from Dicken's 'A Tale of Two Cities' that my mental Rolodex fell open on.  2017 has been a year of contrasts...

The year began with struggle.  I was desperately trying to manage an increasingly stressful job, (not, difficult, highly responsible, very important or suchlike... just really, unnecessarily stressful).  This was being made more difficult because I was trying to cope with debilitating migraines and equally debilitating side effects from unhelpful drug treatments.  There was, I noticed, an uncomfortable familiarity about the way I was treated as a migraine sufferer...  The lack of understanding about the condition, the isolating effect, the ineffectual and sometimes harmful treatments, the lack of available help:  I'd been down this path before...

But, (I said, boldly starting a paragraph with a conjunction, and including a split infinitive in the explanation) another path was being forged at the same time. This was taking place thanks to the tireless enthusiasm of a small group of people I have come to think of as Friends.  (I feel the need to pause and explain at this point, for those of you who might skip over the significance of this statement.  Naming someone as a Friend, for an Aspie, is akin to bestowing the Nobel Prize.  Make no mistake - great things will be expected. (I write this with the confidence of someone who knows their Friends will see the humour here - which is the most delightful part!))

The formation of our fledgling Charity "The Different Engine" has been a difficult, time consuming, fiddly, awkward, tough task.  And it has been an absolute pleasure to be a part of it.  At the start, thanks to the migraines, I could barely look at a computer screen, but now I have nearly finished our new website: TheDifferentEngine.net.  We have our workshops for next year set up, and interest in what we are doing is growing fast.  Leaflets, articles, books and conference appearances are in all the pipeline. I am learning more about myself and how Asperger's effects the way I experience the world around me, every day, and thanks to Rich Hall and Peter Fowerdew's Aspie TA, I can share this learning with my husband, son, students and anyone else who wants to know about it.

Without it, I would not have had the confidence to leave the harmful environment of my last job (because I wouldn't have recognised what was doing the harm).  I would not have had the courage to talk to prospective employers about my Asperger's, (for fear they would not understand) and they would not have realised the breadth of what I could bring to the role (I would not have had the language to explain).  The essential support and understanding of friends and family that I have relied upon through this difficult year would have been drastically reduced, were it not for the the fact that they have joined me on this journey, and we all now have access to this common language.  After 3 years of investigating this tool and its applications, it still amazes me that writing about it can still raise a tingle of excitement and a hitch of breath.

A last minute meeting, recently, proved to the icing on the cake for me...  I had agreed to come along to a meeting arranged by my friend Rich Hall, with a representative from an Autistic support organisation from which we had we both received support over the years.  I wasn't sure if there was an agenda, or if we were just testing the waters, but I listened as Rich spelled out the key stages of our work over the past few years.  Before long, my enthusiasm got the better of me and I there I was:  Waxing lyrical about my experiences and the way my cynical viewpoint had been changed irrevocably by the efficacy of these techniques and methods...  Our audience was somewhat taken aback by what we had achieved in the time since our previous acquaintance, and he spoke at length about his concerns about the direction of Autism research in the international arena.  It was heartening then, to say the least, to hear his positive response to our work - developed by NTs and Asipes together.  This is the most important type of endorsement in my mind - that of people who have lost faith in the systems that are designed to help people like us (most of them researched and designed by NTs in isolation, or using NT designed and interpreted research from autistic contributors)...  If they can see the benefit and scope of what we are doing, then even my appalling self-doubt cannot put up a sufficient argument.  'Nothing about Us, without Us' is one approach, but we chose to look beyond 'Them and Us' to the potential that comes from truly understanding the strengths of diversity  from both perspectives.  What we have achieved could not have been done by NTs or Aspies working in isolation.  We have tackled the barrier itself, and it has toppled.

2017 has indeed been a year of contrasts - illness and healing, leaving a job and gaining new employment, giving in and taking the plunge, despair and hopefulness, self-doubt and self-belief, trying to help and allowing myself to be helped.  Not as eloquent as Dickens, nor as dramatic, but I feel this year marks an important landmark.  "The Different Engine" is about to make a world of difference to a world of people, hopefully, two worlds.  I am very proud to be a part of it.

Abused Amoebas and Career Correlations

I was reading an excerpt from a zoological textbook the other day about the reactions of different types of amoeba to stimulus.  (Yes - this is the sort of thing you will find in my web surfing history.  Shut up.)  It seems that amoeba, generally, rarely move because of a positive stimulus.  (Towards things.) It follows that most of the experiments described involved annoying the amoeba with various negative stimuli and provoking movement. (Away from things.) After I stopped feeling sorry for the amoeba, it struck me that I had something in common with them.

It's been a long time since I had to start a new job.  I began my current employ at the end of 2009, and so, this is as long as I have held any job.  My length of employ in my various jobs has depended on all sorts of things in the past: from the effects of global financial crises, to dodgy contractual practices by employers that left me significantly out of pocket and on the end of a long list of creditors.  Only twice in the 11 jobs I have held, (As a graphic designer, Photographer, Technical illustrator, Administrator, Office Manager, IT Technician, Technical Author, Marketing Manager and Cover Supervisor,) have I chosen to leave.  And then, only because the stress of the situation has begun to effect my health.

It is in the nature of people with Asperger's to work hard.  After all, most things about everyday life are hard for us.  By most things, I mean all the stuff that is relatively easy for NTs.  (Chatting, socialising, networking, building relationships, finding advocates, friends and allies, navigating office or organisational politics.) The things that most NTs find hard:  being focused on work; wading through piles of boring, difficult or unsavoury tasks; learning new and difficult procedures and skills, staying motivated; is relatively easy for us.

Where people like me come unstuck, is that point where we need some support, help or recognition for our work and we look up from our narrow focus and find there's nobody there.  Because we haven't spent our time socialising, building those relationships, finding our allies and advocates, we have to rely on the formal organisational structure, as is. As anyone can attest, this alone is rarely adequate and sometimes even, shockingly, not always in the employee's favour.  It reminds me a little of what it was like during my maternity leave after having my son, Charley.  Finding myself alone with a new baby...  just the two of us, music, the park and a bunch of books:  (The idea of going to 'mums groups' or 'baby massage classes' filled me with absolute terror.)

But this seems to be a fate shared by of many of the people I have since met who have managed to secure regular employment, and who are on the spectrum.  Their remarkable skills and work ethic go unnoticed, simply because they don't know how to get them to register with their colleagues and employers...  The widely proclaimed CPD programmes seem in principle to be diametrically opposed to the 'one-size fits all' mentality of their actual content... and the forms!  They are anathema to the logical mind of an Aspie. The whole thing actually works against us, making us appear 'difficult' and 'unhelpful', when nothing could be further from the truth.  In fact, I think this is probably the most hurtful thing I could be accused of, simply because I try so hard to achieve the opposite outcome.

After discussions with several of the people I will be working with in my new job, I have much more confidence that they understand this.  They are aware of my Asperger's, the skills and strengths that it affords me, and the accommodations that they will need to make for me (some flexibility when it comes to CPD and conferences (large, noisy gatherings in strange places).  For many of us, our work is really our only 'social' contact, and what we do there is how we reach out to people.  It is up to our colleagues and employers to notice that, and accept the offer.  They would certainly not be disappointed if they did.

I digress, and do so because I have to go and write the obligatory 'goodbye email' to fulfil my social duties.  It seems awkward and pointless...  I have no wish to rant about my reasons for leaving, or single anyone out for particular thanks - this I have already done, in person. I see no purpose in throwing out more of the bland and meaningless platitudes that litter the daily lives of teachers.  I expect no card, no presentation, no celebration of my contribution of the last 7 years, which does sadden me, but it's a dusty, old and familiar sadness.  No, I'll leave quietly as usual.  After all, haven't I heard somewhere that it's better to speak softly and wear a loud shirt?

Amoeba Proteus, formerly known as Chaos Diffluens (I wonder why the change...?  Perhaps it's in Witness Protection....)

Friendly fire

I am often told that I am talented.  I am aware that this is meant as a compliment, but I struggle with the concept of compliments.  I am aware that the 'normal' response to a compliment (apart from acknowledgement and reciprocation) is to 'feel good about oneself, and thankful to the compliment-giver.'  It is almost entirely an intuitive interaction. With my logical, cognitive mind, I understand this to be the main purpose of a compliment.

In people such as myself, compliments are not given or responded to intuitively.  I have been known to wax lyrical about how uneasy compliments, in fact, make me feel... I know I have described them as being almost like physical blows, when I am feeling particularly vulnerable.  It is when you experience this without intuiting the good feeling, that a compliment can appear as an unsolicited demand for acknowledgement and reciprocation.

"What?  How cynical!" I hear you cry.  But I assure you, it is not cynicism that negates the positive effect of compliments.  It is merely an effect of applying logic ahead of emotion.  Let me explain:  To say I am talented, is no different (in my world) to telling me that I am above average in some way, at painting, singing, writing.  I know I can paint - I have spent more time than is usual in practicing painting techniques and have become quite proficient in certain aspects.  My immediate response to what is clearly a compliment, is one of confusion.  And herein lies the difficulty.  I will try to break down my thought process to make the outcome clearer: The Compliment:

"You are very talented" (Looking appraisingly at one of my paintings)

I am aware that stating something graciously, like "How nice of you to say!" whilst smiling appreciatively, would be ideal, but this is a false response which is dishonest, and cannot be entertained. The true response is more along the lines:

Oh God! A vague, subjective compliment! Right!  Don't panic!  What does talented mean?  Special? Better? Clever? Blessed? Gifted? Lucky?  Well, I'm none of those...  I just work hard.  There are many more able and innovative artists than me, so she's clearly mistaken.  Hang on, perhaps she's more qualified to tell the difference than I am... I wonder what her credentials are?  I would ask, but that might sound rude.  No, I don't recognise her - I assume she's just 'being nice'.  Is there a hidden agenda here? Right - that means I should say something nice back, and perhaps explain. "Thanks, but I'm not really - It's just something I do to stop feeling overwhelmed or bored."  Hmmm.  That didn't seem to be very well received... Smile your stiff, fraudulent smile and move away.

In my experience, compliments are not the inert selfless gift that they are considered by most.  In my experience they are potentially dangerous ordnance, that should only be handled by qualified experts. If they do find their way into the hands of rank amateurs such as myself, they need to be accompanied by detailed instructions for their safe disposal or deployment.

This may seem a little extreme, but please do not assume I do not appreciate compliments.  They just need to be reasonably well informed and specific.  I will find it much easier to engage with a compliment if it offers some new perspective for me to consider, new data to assess.  Compliments I have heard, and preferred include: "I have seen lots of this type of thing, but none of them quite capture the urban setting as well...", I could walk into your skies" and, (my personal favourite) "I like the dirt and the lamp-posts".

(I can engage with the the first, by asking what other similar pictures they have seen and how they differ; the second, by investigating the reason for this: The geometry? The light? The colour? The third is a statement I cannot argue with - it is a simply stated observation and preference pertaining to an aspect of the painting I had actually planned.)

Of course when they become more thoughtful and specific, they are no longer mere compliments -  they have become meaningful acknowledgement, considered observation and intellectual appreciation.  And these, Euler and I know what to do with...

"Gentlemen, that is surely true, it is absolutely paradoxical; we cannot understand it, and we don't know what it means. But we have proved it, and therefore we know it is the truth." (Bejamin Peirce)

Learning with the Experts

When I explain to people that I have Aspergers, the response can be somewhat polarised.  I am met either with a knowing smile and a slow nod, (as if this is mere confirmation of a long suspected fact) or with utter consternation and denial.  However, both camps can easily be united in disbelief when I mention the fact that I work in a school.  With teenagers.  Front of Class. As a cover teacher.  And in my spare time, help out at my son's primary school and with the local Cubs and Scouts.

It's too noisy, surely?  Too much social interaction?  How can you empathise?  Communicate?  Too stressful? What? No timetable?  Constant change?  Different students and different subjects every lesson?  Nobody on the Autistic spectrum would choose to do this!

I suppose it does seem strange, but let me explain:  I like working with kids.  I prefer to spend my time talking to kids than to adults.  Kids make much more sense.  They are honest (to a fault, like me).  They prefer honesty, but if they do lie, then it can't be hidden (like me).  They are full of wonder and curiosity (like me).  Their potential knows no bounds. They are brave, have amazing resilience, humour and kindness.  They do not judge.  They can always change their minds.  They don't dismiss anything as boring or valueless without trying it out.  They feel everything keenly and react honestly, feeding back instantly.  I could go on and on.

I love learning - It's essential to me, and I will never stop.  To be around people who are as honest as me, as open as me, as full of wonder as me, as fallible as me, as energetic as me, as silly as me (as anyone who knows me and my penchant for giant inflatables can testify!), and as much fun as a barrel of puppies, too - well. It makes adults seem a stuffy lot..

Ah, but those of you who know my previous incarnation of 'Graphics Specialist' working in Environmental Engineering, will wonder why I haven't always worked with kids...  Well, I worked with scientists then, and in my book, that's almost the same thing:  Wonder... curiosity... lack of social sophistication... sound familiar?

Yes of course, it's exhausting, yes it can be frustrating, heartbreaking, infuriating, but at school and cubs, I can be myself with the kids, and I know where I stand with them.  They don't placate, humiliate, undermine, dismiss.  They praise when they are impressed, they criticize when they are not.  It is clear to me when I have inspired them, when I have upset them, when I have amused them, when I've made a difference to them, and I collect the experiences eagerly.  It is easier than being around adults, and I learn more from them than I can in adult company.  I am learning about social interaction as they do - It is more inspiring than anything I have ever done, and when I see them growing up and learning how to manage in the world, it gives me hope for myself.

Charley shows off his Viking ship homework

Who am I to judge?

I was recently received a rather unexpected invitation from my old Art Club.  I was asked if I'd like to come along and be judge for their Annual Art Exhibition.  Oh, and by the way, if I could see my way to providing a short workshop on pastel work at a later date, then that would be lovely, too.  I agreed straight away; flattered and surprised, as I always am when someone unexpectedly acknowledges my existence in a positive way...   Of course, once I had sufficient time to really process the request to  judge the artworks, I began to panic:  Questions like "I'm not a professional artist... how am I qualified to judge?"  I was a member here just a year or two back... how am I any better now?" and "I don't know anything about art" all clamoured for the top reason why I should renege on my agreement.

I have a long and illustrious history of agreeing first, considering the repercussions after, and then panicking at an exponential rate at the event draws closer.  It is, I have learnt, an excellent way to experience new, sometimes challenging situations that I would not otherwise attempt.  Sometimes I agree to things that don't benefit me in any way, and have, in the past, agreed to things that have been damaging to me.  It's a bit high-stress, I'll grant you, but if I start thinking about something, then you can forget it.  I should pause, about now, to apologise to my long-suffering husband who has borne the brunt of many such situations and who has always stalwartly seen me through the frantic run-up to such events.

(I should also let you in on the chuckle I'm currently having at my own expense - I just spent 20 minutes looking for a suitable alternative to 'run-up' in several online and hard copy thesauruses, and am now late leaving work.  See what I mean about the thinking?)

I knew I couldn't back out, and I really did want to visit my old club...  I had first joined at the suggestion of psychologists running the post-diagnosis group I attended, with a view to engaging in 'structured socialising', which is much easier than the usual method (which I usually refer to as 'cold calling').  Everyone at the club was pleasant and welcoming, and they made it much easier than I had any right to expect.  I had wanted an opportunity to thank them for this, and here it was...

I wrote a short speech explaining what the club had meant to me, and wrote suitable appropriate generic paragraphs filled with glowing praise for all the various elements of what I considered the fundamentals of quality art (thank goodness for that single year of A level History of Art I completed, and Mr Berger for 'Permanent Red'!), and left gaps for additional information I would fill in when I had seen the exhibition.  I found out the categories for which I was expected to find winners and runners-up.  My intention was to leave as little to do as possible on the night. (Spontaneity is a minefield for me with my slow processing for social interaction... You will not get an honest impression, as you might expect from an NT being spontaneous... you'll just get a carefully rehearsed show - I need notice to be spontaneous!)

On the night, I found the decision-making easy, as expected:  I am nothing if not practical, and my objectivity, and lack of bias goes without question.  I asked my husband to review my choices, simply to make sure I had not inadvertently chosen pictures too similar in style or by the same artist.  I gave my speech, adding comments relevant to the individual works, gave out the prizes, shook hands, finished my wine, and that was it. Done.  And everyone got out alive.

I am patently aware that many of these situations actually pass without incident, and I am equally aware that most of the people around me can see the potential for this clearly.  It pains me to confess that I simply cannot see things from this perspective until after the event.  Then, everyone's' confidence becomes perfectly clear, and I feel terribly foolish.  You'd think I'd learn, wouldn't you? The problem is: I don't.  Because I'm not NT.  No matter how many positive outcomes I have, this never gets any easier. I never become more assured of success, but I do notice one change:  I allow myself to be talked into things that might be good for me that little bit more often.  A small, incremental step, but nevertheless, in the right direction...

Interestingly, the thought of carrying out an hour's workshop in front of 20 people watching my every move and interrogating me on my technique doesn't bother me at all...

Busy-ness as usual

Of all the behaviours that characterise my Asperger's there is one I struggle to explain to neuro-typicals (NTs).  It seems to be so alien a concept to most; one that NTs often rationalise it as 'showing off' or 'bragging' or suchlike.

I like to be busy.  It is integral to my continued functioning.  If I don't have enough to occupy me.... bad things can happen.  I am sure I have mentioned before, my dread at instructions like: 'Take it easy!'  'Relax!'  and my personal favourite: ' Chill.'  Clearly, these people do not realise that, without a suitable task to engage with, I might end up trying to start a conversation or similar lunacy.

Casual conversation is somewhat of an oxymoron for someone like me:  'Chatting' is such a complicated undertaking, I will try to avoid situations where it is likely to happen. Should I find myself unexpectedly alone and in unfamiliar surroundings, I start to panic a bit, often choosing to start a conversation in a bid to avoid appearing withdrawn and awkward.  However, my attempts are more likely to ensure I end up being precisely that.

So... I keep myself busy.  Every waking moment is taken up with a task of some kind.  Of course, I may choose something repetitive or non-physical when I'm tired, but I cannot simply do nothing.  And it needs to be interesting or relatively complex to keep my attention.  Even when watching TV - I cannot submit to 'mindless entertainment' unless I am actually trying to fall asleep.  If I want to relax, then I indulge in one of my interests - perhaps reading scientific articles, drawing, correcting grammar on blogs, researching some historical event... whatever takes my fancy.

There is a happy side-effect to this kind of activity:  One learns about things.  This can have the even happier effect of Making You Knowledgeable, but this is a double-edged sword which only becomes apparent when you attempt to use what you have learned in casual conversation.  I simply fail to differentiate between chatting about Gravitational B Waves and who got arrested on East-enders last week.  (There's a sentence I never anticipated writing!)  Clearly, one belongs in casual chat, and one does not.  The trouble is I cannot, for the life of me, understand why this should be the case.  Of course, the more you learn about the world, the less interesting the mundane, everyday things become, which compounds the problem.

When I attempt to inject this type of interesting content into conversation; (with my formal language and vocabulary) instead of  gleeful exclamation or an equally interesting tale in return, I am met with consternation, confusion or, even worse, the rolling eye smirk which is evidence that you have been consigned to the conversation dustbin as a 'show-off' or 'know-it-all'.  It is not my intention to belittle, nor to assert my superiority. Formal conversation with its rules and exchange of facts and opinions is much simpler to navigate: The idea of talking without objective purpose is difficult for me to fathom let alone, master.

This is all very well, and I can explain my motivations and understand the reactions I get in return...  But my choices in general conversation are limited:
1. I could explain the situation, and my odd behaviour to potential participants in a conversation. (A good way to end the chat before it starts.)
2.  I could learn the mechanics of transactional analysis (the psychology of social interaction) I have read several books on the subject, but it's very hard work to sustain conversation using these intellectual techniques)
3.  I could choose my conversations and subjects very carefully...(just wait until I meet someone else interested in quantum physics, clouds, 18th Century Naval history and ornithology...) or
4   I can learn to love internet cat videos and East-enders.... hmmm...

The home of all awkwardness... the wonderfully awful Bottom.

Capacity building

I recently travelled to Egypt for a diving holiday.  Seems such a straightforward and harmless statement doesn't it?  I went on holiday - just popped onto a plane and got off in another country, got my transfer to the accommodation and Bob's your uncle!

Here's how my experience really went:

We piled into the car at 4.30pm on Good Friday and took to the road.  Apparently, the rest of the UK did, too.  Even though I wasn't driving, the ensuing 2 hours, 45 minutes of motorway driving left me exhausted:  The driving conditions were poor, with rain, darkening skies and roadworks and breakdowns everywhere.  When travelling at speed, I find the rate of visual input completely overwhelming, but I am also plagued with anxiety which furnishes me with constant, detailed and realistic visualisations of potential incident after potential incident.  The truly exhausting part was having to hide all this from my son, so that he wasn't affected by my anxiety.

Fortunately, I have had plenty of experience of staying in hotels (required in several of my previous jobs) so I am not as affected by strange accommodation as I might be.  The grossly decorated lobby with its alarmingly squishy carpet was airy and open plan, so I was able to relax somewhat - only the constant visualisations of horrific plane crashes from the neighbouring Gatwick Airport to concern myself with...

An early morning rise for check-in saw the return of my favourite coping mechanism:  Panic humour. Being hyper aware with anxiety means excellent comic timing, and there was a wealth of material in peoples' reaction to the ludicrous management and staffing in the check-in queues...  A welcome distraction from the looming flight.  By the time we entered the departures lounge and it's wealth of noisy, smelly, crowded food outlets, I was exhausted and staring at the joins in the flooring materials whenever possible.  Still aware of the importance of 'staying positive', I kept up the cheery exterior and focused on my son, who was taking everything in his stride, considering it was his first trip abroad... only my husband was aware of my mounting anxiety.

The bus journey to the plane seemed to take forever - showing every possible angle of the plane that was to be our transport to Egypt.  I forced myself to endure it, inwardly chanting things like "no, the rivets are supposed to look like that", "don't look at the engines" and "you don't know anything about what well-maintained landing gear looks like", and trying to remember air travel versus air accident statistics to put my mind at rest.  This self calming continued on board - "they look competent".  "At least the pilot seems mature"...  The facade nearly slipped when my son insisted I sit next to him in full view of the tiny window for the 5 hour journey.  A matter of minutes later, I found myself in the ridiculous position of 'whooping' for my son's benefit at the excitement of the take off, whilst simultaneously crushing my husband's hand in terror!

As soon as we were allowed, I got out my chosen book and put on my mp3 player at top volume, determined to distract myself from anything that might remind me that I was in a plane.  Sadly, my book choice could have better, beginning as it did, with an explosion at an airport...  Luckily, my son's tablet battery lasted almost the entire flight, so I didn't have to keep up the facade for him, but my husband's hand suffered every time there was a little turbulence...

The next five hours are, thankfully, already fading from my memory - a nauseating cycle of anxiety, trolley avoidance, speculation and visual scenarios until our imminent arrival at Hurghada was announced. Any relief was short lived as figures for the statistical likelihood of failures on landing began whizzing though my head, despite my understanding of the overall safety of air travel.  After a bit of waiting around, security checks and baggage collecting, we made our way to the exit to meet our transfer. I was practically a zombie by now, all my coping mechanisms exhausted, so the hour and a half break-neck drive to our destination (with no seat belts and a tendency for our alarmingly young driver to drive at on-coming vehicles even when blinded by their full beams) passed relatively quickly.

I did not sleep for the next 3 nights.  This seems to be as a result of the anxiety of this type of travel - I usually just crash after too much social interaction - sleeping for longer than usual, but foreign travel requires another magnitude of effort.

The journey back was somewhat less stressful, buoyed as I was, by having survived the journey there!   Why put myself through it?  Well this isn't simply a fear of travelling...  I know it will improve, as everything does, with familiarity - my capacity for dealing with travel will improve.  It is only now that my son is old enough to have qualified as a diver that we can all go together.  I am immensely pleased to be a diver and able to see the amazing sights under the Red Sea, as the memories generated by the holiday in between these terrifying episodes have to be amazing to justify the effort!

Anxiety Rules (First posted 9th January 2016)

I worry about things a lot.  This can make me seem pessimistic and paranoid, but it is something I struggle to control.  It’s something that has been with me for as long as I can remember. Whenever I had an unsatisfactory exchange with a family member, another student, or teacher at school, (a misunderstanding, perhaps, or failure to notice and comment on a new haircut) I would worry for days, if not weeks about it, literally losing sleep over it, and it would often lead to my avoiding the person in question thereafter.  

Equally, if I had a pleasant and successful exchange, (a long conversation with someone who shared one of my interests, for instance) I would soon begin to worry about the potential for a misunderstanding (on my part) to bring about the end of a burgeoning friendship, leaving someone I cared about hurt and confused.  I am blessed with a singularly vivid imagination and the graphic nightmares that accompany this anxiety are cinematic in nature.  This anxiety, this self-doubt has never left me and still colours every exchange.

This fear is an issue that is well known among people with Asperger’s, and it can be crippling.  I am lucky in that I have people to help me to find the courage to keep trying: I have the support and understanding of my wonderful husband who’s outgoing personality continues to put opportunity after opportunity for socialising in my path.  I also have the added incentive to be a strong and confident role model for my son.

Decoding everyday exchanges in a purely intellectual way is extremely hard work and riddled with danger.  (This is the reason for my usual frown of concentration; putting on a smile is just another thing I have to remember.)  I work in a large school and have to tackle hundreds of such exchanges every day.  Granted, it is easier with children, as they are usually more honest, predictable and transparent in their exchanges than are adults. To engage at all, I have had to become a student of language myself (researching colloquialisms, idioms, turns of phrase, body language and the like.)  Unfortunately, I didn’t realise until after I had embarked on this course of action, that learning to ‘navigate’ creates a vicious circle of its own:  The better you cope, the less understanding people show when things go wrong.  The longer you can keep up; the more ‘normal’ you appear, the more likely that misunderstandings will be judged as willful or deliberately hurtful.   It is EXHAUSTING.  

The endlessly sophisticated and ingenious intricacy of human communication navigated intuitively by neuro-typicals is mind-boggling.  Most people can have no awareness of the sheer volume of observations, decisions, judgments made,  hints, clues, signals given in a matter of seconds during a casual chat.  It is an enormous barrier to understanding those of us who do not possess this intuition.   It was this realisation that led me think more about the handful of people that I can truthfully call ‘friends’, and appreciate the patience they show and efforts they make in merely putting up with me!  Not giving myself enough credit, you think…?  No.  I have no illusions about that. I am patently aware how different things might have been…

Anyone with Asperger’s will know about the ever-present companion to anxiety: Depression.  It is a constant battle not to give up the effort, close the door and surrender to self pity, exhaustion and the inevitable spiral into depression.  I have had many periods of deep, damaging depression in my life, and I am immensely proud and pleased that I have not had a major episode for the four years since my diagnosis.

I am sorry if this post seems to concentrate too much on the negative, but that is a necessity when you discuss feelings like fear, doubt, anxiety and depression.  They are an ever-present part of my reality.  Don’t worry! I will write another post shortly about some of the amazing gifts and joys that also share my everyday life.